
ERDR* System Design competition
ERDR
DATA IS GOLD
European Rare Disease Registry
OPEN DESIGN COMPETITION FOR HIGHER EDUCATION STUDENTS TEAMS
(Tallinn University, University of Helsinki, Aalto University, University of Tartu, Tallinn university of technology and also student groups in other Universities in EU and all data enthusiasts!)
from 1st of June 2022 - to 17th of November 2022
There are “systems” and then there is The System designed by you and your team
If you are already data enthusiastic and you want to make a footprint in one or more of the following fields:
Data-science,
Life-science,
Medicine,
Engineering,
Economics,
or Law,
this competition is for You!
“There are still people dying of completely preventable rare diseases.
Today the situation is terrible for patients who suffer rare diseases, even in the EU.
Studies show that most patients could have been saved by providing a fast and accessible registry for the researchers.
Let's remove all the obstacles by providing a rare disease registry service without any borders and barriers.”
The winning team will be awarded with a 30,000€ cash prize (taxable income)
ERDR is a competition where you and your team will design a preliminary patient registry system for rare disease researchers and patients with the Data Altruism philosophy.
Building Effective and Ethical Data Institutions workshops fall 2022.
BEEDI Workshops
Dilaw as an organizer will launch a series of workshops.
You can participate in the events both as a group and alone. Admission to the workshops is free. All workshops will be virtual.
Interested?
Please check competition details
and participate with Your team
"THE MORE THE MERRIER"
(suggested teams size 2-6 persons)
*ERDR competition is for students in the Universities in Tartu, TalTech, Aalto, Helsinki and Others
ERDR is a trademark of DILAW Attorney-at-Law Ltd
"THE MORE THE MERRIER"
The purpose of the competition is to design a European rare disease registry and operating model implemented with the Data Altruism philosophy.
The competition will be implemented using the Swarm Intelligence method with University of Helsinki, Aalto University, University of Tartu, Tallinn university of technology student groups and all data enthusiasts.
We recommend teams with 2-6 persons to participate.
The result of the competition is a design / plan / of the ERDR system.
Result is a freely formatted application and it should provide answers to:
With whom, the basic plan for applying for funding
What should ERDR contain and produce
How should it work and function
Who should run the system - following the altruism philosophy
The ERDR system will be implemented in a separate project in 2023
Check detailed Timeline here
A prize of 30,000€ will be awarded to the winners